PALLIATIVE CARE AND HOSPICE CARE COMMITTEE

Resources

LOCAL ORGANIZATIONS

Connecticut Pain Initiative (CPI)
Phone: 203-379-4763
Web: http://www.cancer.org/pain

Connecticut Association for Home Care and Hospice
Phone: 203.265.9931
Email: info@cahch.org
Web: http://www.cthomecare.org

Connecticut Coalition to Improve End of Life Care
Email: info@ctendoflifecare.org
Web: http://www.ctendoflifecare.org


NATIONAL ORGANIZATIONS

The Alliance of State Pain Initiatives (ASPI) is a national network of interdisciplinary, state-based organizations dedicated to transforming the culture of pain care. State Pain Initiatives are typically volunteer groups composed of nurses, physicians, pharmacists, social workers, psychologists, patient advocates, and representatives of clergy, government, and higher education who are working to improve the care of persons with pain. 
Web: http://aspi.wisc.edu

American Academy of Hospice & Palliative Medicine 
AAHPM is an organization of physicians and other medical professionals dedicated to excellence in palliative medicine, the prevention and relief of suffering among patients and families by providing education and clinical practice standards, fostering research, facilitating personal and professional development of its members, and by public policy advocacy.

American Hospice Foundation 
The American Hospice Foundation works to improve access to quality hospice care through public education, professional training, and advocacy on behalf of consumers. The Foundation supports programs that serve the needs of terminally ill and grieving individuals of all ages.

American Pain Foundation (APF)
APF raises public awareness, provides practical information, promotes research, and advocates to remove barriers and increase access to effective pain management. 
Web: http://www.painfoundation.org

Hospice Foundation of America 
HFA provides leadership in the development and application of hospice and its philosophy of care with the goal of enhancing the U.S. health care system and the role of hospice within it. Conducts programs of professional development, public education and information, research, publications and health policy issues.

Hospice and Palliative Nurses Association 
The purpose of the HNPA is to exchange information, experiences, and ideas; to promote understanding of the specialties of hospice and palliative nursing; and to study and promote hospice and palliative nursing research

The National Hospice and Palliative Care Organization (NHPCO)
The largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.http://www.nhpco.org


PRACTICE GUIDELINES

Clinical Practice Guidelines for Quality Palliative Care, Second Edition
National Consensus Project For Quality Palliative Care
http://www.nationalconsensusproject.org/AboutGuidelines.asp


EDUCATIONAL RESOURCES

Beth Israel Medical Center MAYDAY Resource Center for Pain Medicine and Palliative Care
Serves as a clearinghouse for the dissemination of educational materials in pain medicine and palliative care for physicians, nurses, pharmacists, psychosocial professionals, and patients and family caregivers.
Phone: 877-620-9999
Web: http://www.stoppain.org

The Center to Advance Palliative Care (CAPC) 
Provides health care professionals with the tools, training and technical assistance necessary to start and sustain successful palliative care programs in hospitals and other health care settings. http://www.capc.org

City of Hope Pain/Palliative Care Resource Center
Disseminates information and resources that will enable other individuals and institutions to improve the quality of pain management. Some materials are available directly from their website while many other materials are available for ordering by mail.
Phone: 626-359-8111 x63829
Web: http://prc.coh.org

The End-of-Life Nursing Education Consortium (ELNEC) project is a national education initiative to improve end-of-life care in the United States. The project provides undergraduate and graduate nursing faculty, CE providers, staff development educators, specialty nurses in pediatrics, oncology, critical care and geriatrics, and other nurses with training in end-of-life care so they can teach this essential information to nursing students and practicing nurses. http://www.aacn.nche.edu/elnec

End of Life/Palliative Education Resource Center (EPERC)
Provides support for individuals involved in the design, implementation, and/or evaluation of End-of-Life/Palliative education for physicians, nurses and other health care professionals.Web: www.eperc.mcw.edu

The Medical College of Wisconsin Palliative Medicine Program
Committed to improving care for the dying in America through the development, implementation and dissemination of innovative education and clinical care programs and offers resources online at an accessible price. Web: www.mcw.edu/pallmed

Palliative and End-of-Life Care Education at Yale University School of Medicine.
Over the past several years the Yale School of Medicine has developed and implemented successful educational activities to enhance end-of-life and palliative care curriculum at the Yale School of Medicine. Focused on integration of end-of-life and palliative care education into the curriculum over the four years of medical school, the program provides a comprehensive approach that focuses on the physical, psycho-social, spiritual and practical needs of patients and families. http://www.palliativecare.yale.edu 

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